Experiências de mulheres com doença falciforme com aborto e morte fetal

Abstract

Sickle cell disease directly interferes with the experience and reproductive health of women. It does not contraindicate pregnancy, however, because of its potential for severity, gestation in women with this diagnosis is considered to be at high risk. It is emphasized that pregnancy is a very desired event where it creates expectations regarding maternity, yet for women with sickle cell disease it is another risk factor, which may leave them insecure and fearful about the future of gestation, health. The loss of the child during gestation brings diverse reactions, usually very suffered. There is a devaluation of the woman's self-image by the feeling that her body could not function properly during gestation or by the belief that it is not able to play its biological and conjugal role. The objective of the research is to analyze the experiences of women with sickle cell disease in situations of loss, caused by spontaneous abortion, fetal death and how they reconfigure the wishes of motherhood. This is a qualitative study, carried out with 20 women with confirmed diagnosis of sickle cell disease, who already had experience of gestational losses and registered in the Municipal Ambulatory of Viral Hepatitis and Sickle Disease of Salvador / BA, through semi-structured interviews using as method of analysis the Discourse of the Collective Subject. The results show that in the face of pregnancy and motherhood, coping with death can be an extremely painful experience for both the pregnant woman and her family, guilt, depression, sadness, institutional racism and lack of professional preparation are signs of injury psychological symptoms suffered by women, indicating how deeply the loss sensitizes them, causing them to suffer physically and emotionally. The results show how the lives of these women were strongly marked by disease and gestational loss. Maternity in women with sickle cell disease presents several concepts and different ways of thinking, the experience of motherhood is impa time, many expectations and feelings, especially when it refers to a state of waiting / uncertainty, as is the gestation of women with the disease to an objective reality of motherhood. The speeches present the participation of the companion and the family and the importance of their support during the life and the choices of the women in coping with the disease and in the reproductive decisions. The issue in focus has been the subject of discussion in the scope of public health policies. In order to make these policies feasible, it is necessary to seek the meaning of the expression of gestational loss and the meaning of motherhood, the option to have children, although at risk, must be ensured through family planning and prenatal care assistance quality.